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Abstract
Thalassemia is a hereditary condition that results in the creation of defective haemoglobin molecules. Patients are diagnosed with thalassemia major after exhibiting severe clinical symptoms and profound anaemia. This study aims to investigate the major thalassemia and psychosocial aspects of it, which is a critical issue, in order to serve as a road map for better treating these patients and contribute to the literature. This study used narrative review as its method. Between 2018 and 2023, a literature review was undertaken by searching materials published in databases such as Web of Science, PubMed, Scopus, and the Google Scholar search engine. Additionally, the WHO website was searched. Thalassemia major harms the heart, liver, lungs, and endocrine organs due to anaemia and iron buildup. Furthermore, the patient could experience. Mental and social issues arise as a result of the disease's congenital aetiology and lifelong duration. Thalassemia patients face significant emotional challenges as well as therapeutic burden. There are numerous research on the prevalence and physical implications of thalassemia. However, there are insufficient papers and studies documenting the psychosocial impacts of thalassemia on patients and what may be done to mitigate these effects. As a result, this research focuses on the process of thalassemia and the psychosocial problems it causes in order to contribute to the literature and provide a road map for better managing these individuals
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References
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References
. M. Sabirov, M. Bobokulov, K. Khaitov, and B. Munavvarov, "Kidney Transplantation: Medical and Social Problems and Clinical Approaches," Journal of Medicine and Innovations, vol. 3, pp. 111-120, 2022.
. S. I. Zaripov, I. A. Turaev, and S. S. Rakhimov, "Quality of Life in Patients with Chronic Kidney Disease Receiving Program Hemodialysis and Possible Ways of Its Correction," Uzbek Medical Journal, vol. 3, no. 5, 2022.
. Z. S. Istamovich, A. K. Sadullayevich, and A. N. Mirza-Bakhtiyarkhanovna, "The Significance of Autoantibodies in the Pathogenesis of Systemic Sclerosis (Literature Review)," Journal of Biomedicine and Practice, vol. 8, no. 2, 2023.
. M. B. Rakhimova, K. S. Akhmedov, S. S. Rakhimov, and S. I. Zaripov, "Extraskeletal Manifestations in Patients with Ankylosing Spondylitis," Journal of Coastal Life Medicine, vol. 11, pp. 1315-1321, 2023.
. S. I. Zaripov and M. B. Raximova, "Quality of Life in Patients with Terminal Stage Renal Disease Receiving Programmed Hemodialysis," Innovation in the Modern Education System, vol. 3, no. 26, pp. 228-229, 2023.
. Z. F. Umarova, S. B. Jumanazarov, S. I. Zaripov, and R. M. Khaydarov, "Quality of Life in Patients with Chronic Kidney Disease in the V Stage Receiving Program Hemodialysis and Possible Ways of Its Correction," Journal of Medicine and Innovations, 2024.
. S. I. Zaripov and N. M. B. Abdurakhmanova, "The Relationship Between Systemic Sclerosis and Anti-Fibrillarin Antibodies," Journal of Modern Educational Achievements, vol. 6, no. 6, pp. 235-238, 2024.
. S. I. Zaripov and N. M. Abdurakhmanova, "Quality of Life of End-Stage Renal Disease (ESRD) Patients Receiving Hemodialysis: Influencing Factors and Approaches to Correction," Texas Journal of Multidisciplinary Studies, vol. 21, pp. 14-17, 2023.